Patient Support Groups and Foundations

Here are some recommended Support Groups and Foundations

Basal Cell Carcinoma Nevus Syndrome Life Support Network
For more general information about the syndrome, click here.
440.834.0011
www.bccns.org
info@bccns.org

Cicatricial Alopecia Research Foundation
310-801-3450
carfintl.org
info@carfintl.org

Cutaneous Lymphoma Foundation
clfoundation.org
To join the mailing list, click here.
248-644-9014
Or contact us via email

Foundation for Ichthyosis & Related Skin Types
firstskinfoundation.org
Contact us here.

International Topical Steroid Awareness Network
itsan.org
Contact us here

Lupus Foundation of America
lupus.org
Main: 202.349.1155 (8:30 a.m. – 5:00 p.m. M-F Eastern Time)
Information request line: English / Para informacíon en español 1.800.558.0121
Email: info@lupus.org

National Foundation for Ectodermal Dysplasias
nfed.org
Request more information here.

National Alopecia Areata Foundation
NAAF.org
Phone: 415.472.3780
Email: info@naaf.org

National Eczema Association
nationaleczema.org
Contact us here.

National Psoriasis Foundation
503-244-7404 or 800-723-9166
psoriasis.org
Email: getinfo@psoriasis.org

National Rosacea Society
rosacea.org
1-800-NO-BLUSH
Email: rosaceas@aol.com

National Vitiligo Foundation INC
nvfi.org
513-793-NVFI (6834)
Email: info@nvfi.org

Nevus Outreach
nevus.org
877-426-3887
Contact us here.

Pachyonychia Congenita Project
pachyonychia.org
Contact us here
info@pachyonychia.org

Pemphigus Foundation
pemphigus.org
info@pemphigus.org
855-473-6744
916-922-1298

Skin Cancer Foundation
skincancer.org
212-725-5176
Email: info@skincancer.org

Sturge Weber Foundation
sturge-weber.org
800-627-5482
swf@sturge-weber.org

Vitiligo Support International
vitiligosupport.org
434-326-5380
Contact us here